Patients and the care of predictive genetics

Drawing mainly from 'follow up' interviews carried out with the same group of women attending the clinic for the first time, whose expectations and practices were explored in the first chapter, this section examines what the 'care' of predictive genetics means for the experience of being a patient. This parallels the work of Carlos Novas who has explored how a moral discourse relating to the development of predictive testing for the disease helps construct the identity of those at risk as 'uncertain subjects' (2005) and Monica Konrad who examines the how 'pre-symptomatic persons' and 'inter-generational relations' are constructed by the 'ethico-temporal' aspects of pre-emptive knowledge (2005). Exploring how a certain group of persons respond to and participate in certain pastoral modalities relating to the future, family and gender makes visible the diverse and sometimes fractured pathways by which persons become patients in this clinical speciality.

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